2006 Prader-Willi Event

Our 2006 benefiting The Prader-Willi Research Foundation proved to be an excellent inaugural event.  We are very thankful for the support of all of our “Foundation Friends”.  With their help, we were able to provide over $25,000 in funding for Prader-Willi research.

Prader-Willi syndrome (PWS) is a complex non-hereditary birth defect resulting from an abnormality on the 15th chromosome. It occurs in males and females equally and in all races.  PWS typically causes low muscle tone, short stature if not treated with growth hormone, incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity. The food compulsion makes constant supervision necessary. Average IQ is circa 70, but even those with normal IQs almost all have cognitive deficits and require special education. Social and motor deficits also exist. At birth the infant typically has low birth weight for gestation, hypotonia (weak muscles), and difficulty sucking due to the hypotonia (“failure to thrive”). The second stage (“thriving too well”), with onset between the ages of two and five throughout lifetime, usually is characterized by increased appetite, weight control issues, and motor development delays along with often severe behavior problems and medical issues.
For more information on PWS, please visit www.fpwr.org.

2006 Bernard P. Floriani Foundation Golf Champions

          Jack McCauley, Matt McCauley, Jake Smeltz, Cary Salm